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Hope, Home, Happiness – is it too much to ask?

Hope, Home, Happiness – is it too much to ask?
Hope, Home, Happiness – is it too much to ask?

What is the purpose of life?

A seemingly simple question yet old and young ponder over its hidden complexities. From the skyscraper office-inhibitor to the school back-desk dreamer, at least once in a while, the thought dances over our minds. Yet, we push this idea aside and in a flash we begin our personal journey of life – get an education, pass exams, go to university, get a job and before we know it, we are back to square one. However, this time, we are probably lounging late one night in our newly furnished dining room, or swivelling in a leather chair as we admire the freshly bought mahogany table sprawled before us. All it takes is a simple preacher, an idle headline, a passing thought to snap us out of our delicately designed futures with busy lives to remember ‘Oh, how unfortunate’ as we see a 4 year old child dying of cancer. Not because treatment wasn’t available but because a home was not.

Access Life America (ALA) is a non-profit organisation, which regardless of its individual volunteers’ purposes of life, works as one unit to combat this issue. Like battleworn warriors, they charge into the center of the fight, picking up children and families warring against cancer, and bringing them to a safe (and hygienic) haven. Working with AccessLife Foundation (an organisation based in India), they lock horns to improve the quality of life of children, who otherwise would not have the chance to live. Supporting parents and families, providing a home-like environment, recreational activities, educational resources – anything and everything they can do to make a change and help these children.

The shift is truly remarkable.

ALA offers a life revolutionising tour – one that I was very lucky to attend. Due to the current pandemic, I met the staff virtually who then took me through a tour of the accommodation to the playing area, sleeping quarters and even the kitchens. Yet, sitting behind my screen as I smile glossy-eyed, listening to the sweet singing of a boy whose life is changing with cancer treatment and still manages to break into a wide grin with cheerful eyes as he thanks me profusely for talking to him, shifted my goal. Seeing these families laugh, seeing the children smile, seeing the homes that have been provided to them sends you ripples of joy which is almost heart-breaking. It is a once in a lifetime experience that no one can ever replicate. So when I turn to the heroes working to help these families, what can I offer? They have changed children and given the gift of life – a gift so precious that one can never know what it is like to have it taken away.

Yet warriors need armour and hospitals need medicine. ALA has a noble mission: To offer a home-like environment for families arriving for cancer treatment and to improve the quality of life of the children by providing practical support services and recreational programs. To aid this mission, we need funds so that these children can continue to be given the beautiful gift of life. Give a one-off donation or for $25 a month (£20), you can provide a family and be a part of this change. You can donate at: www.accesslifeamerica.org/donation

We all have time to waste on thinking about our paths and purposes but a child living in a rural village, is a minute away is contemplating death over spending all their parent’s savings to get a bus ticket to the hospital. And even if that child gets that ticket and reaches the hospital, then what? The family needs a home, food, water and without these fundamental items, everyone will perish. Take the chance to change lives or minute by minute, a child will die. Are you going to continue to waste your time?

Ralph Waldo Emerson stated ‘The purpose of life is not to be happy. It is to be useful, to be honorable, to be compassionate, to have it make some difference that you have lived and lived well’.

So scrap the purpose of life, let me ask you, if you died tomorrow, would you like to have saved a family, a child, a life, and lived well?

About the author:

Devangi Vyas is an avid blog writer, future medical student, a friend and a daughter. She enjoys working with different organizations that focus on giving back to the community and helping families in need. Recently she was part of AccessLife America’s Youth Leadership Program (Thrive for Success) where she spent six weeks learning about non profits, leadership skills, basics of fundraising and mechanics of global philanthropic initiatives. She is the founder of Newstead Soroptimist, a school-based branch of the UN recognized charity Soroptimist International, fundraising to execute unique projects aiding the community as well as women and girls across the globe.

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Cancer Survivors

Vishal Lahase

Meet our BraveHearts

Vishal Lahase

Age : 9 years

Hometown – Buldana, Madhya Pradesh (340 miles from Mumbai)

Vishal is a cheerful child who loved to make friends. He is outgoing, actively mixed with the other kids and took part in the activities conducted. He loves to play and has a knack for painting.

Fighting Cancer

Vishal’s symptoms started with a typhoid fever, which fluctuated for one and a half months. The child was treated by a local doctor at a village nearby, and stayed there for about two weeks. However, on coming home, the fever relapsed and Vishal had to be admitted to the ICU. A blood transfusion was done. Post this, in the blood test report, it indicated an increase in blood platelets and the doctor at Orbit hospital in Akola suspected a possibility of cancer. The doctor advised the family to go to Sion Hospital in Mumbai, which they followed. After coming to Mumbai, they did a BMT Test, which confirmed blood cancer.

Challenges

Vishal’s primary caregiver is his uncle and grandmother as his father is not mentally stable and he lost his mother at a young age. The family faced financial difficulties, which were partially alleviated by the help of a few relatives. Furthermore, they did not know what cancer was, and were mentally and emotionally taken aback by the news of the child’s disease.

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Cancer Survivors

Sumantra Das

Meet our BraveHearts

Sumantra Das

Age : 3 years

Place : Takagachh, West Bengal

Sumantra is a cheerful happy child who loved to be around other kids. He became a resident of the Access Life center in September 2020.

Fighting Cancer

Sumantra had a pain in his stomach which refused to go away even after taking medicines. He was then taken to a big hospital where the doctor prescribed a few tests like X-ray, blood tests to know what exactly the problem is. The X-ray report showed solid tumor. The doctor also did CT- Scan and diagnosed PAED Solid Tumor. The family was then suggested to go to Tata Memorial Hospital in Mumbai for further treatment.

Challenges

The family already has financial troubles due to low income. Family relatives reached out to help them travel to Mumbai. The family didn’t have any idea about Childhood Cancer and the news was very shocking for them and difficult to accept. It taxed them both mentally and emotionally. Sumantra has a sister who stayed back with grandparents in their hometown. The parents missed the other child and it was difficult for the child also to stay away from the parents for so long. Furthermore, the family speaks Bengali and can only understand very basic Hindi. This language barrier added to the challenges they faced in Mumbai.

Categories
Cancer Survivors

Alia Ansari

Meet our BraveHearts

Alia Ansari

Age : 3 years

Hometown : Samastipur, Bihar (1100 miles from Mumbai)

Alia is an extremely cheerful child with a dazzling smile. That is the reason she has been dubbed as the ‘Alia Bhatt of Access Life’. Alia loves drawing and every time she sees a colouring book or colour pencils her happiness is beyond imagination.

Fighting Cancer
Alia’s initial symptoms were night fevers that started when she was about 3 years old. The fever would be gone during the day and she would be fine. Local doctors were unable to diagnose why this was happening. After about 2 months, the family took her to a hospital in Darbhanga city. After a PET Scan report, the doctors told Alia’s parents to take her to Mumbai without mentioning anything else. Only when they reached Tata Memorial Hospital did they come to know that Alia had Stage M-Non Infantile Neuroblastoma. 

She had been advised 8 cycles of chemotherapy. After two chemos she was advised to visit a Physiotherapist as she was not able to stand and move independently. She can now walk independently.

Challenges
Alia is part of a joint family which helped her initial treatment by procuring a sum of Rs. 55,000. However, in Mumbai, the cash has run out and Alia’s father tried his best to procure more funds from trusts. Alia’s father risked losing his job in a garage on his return to Samastipur. On reaching Mumbai, the family put up with a relative. However it was a tiny rented place which already had seven people living in it. Alia’s father would often sleep on the pavements. Also, the place was very far from the hospital. The family was very grateful to find out about Access Life.

Categories
Cancer Survivors

Konark Singh

Meet our BraveHearts

Konark Singh

Age – 3 years

Place – Gonda, Uttar Pradesh (900 miles from Mumbai)

Konark is a calm, playful child who started residing at the Access Life Bandra center from September, 2020. In fact, he celebrated his 3rd birthday at Access Life. He loved to watch cartoon with others at the center.

Fighting Cancer

Konark first experienced an acute pain in his eyes. He was taken to an eye specialist in Ghaziabad and on further diagnosis he was found to have Retinoblastoma. Konark’s family brought him to Mumbai to get treated and completed the treatment. With one chemo remaining, the family was advised to go back to their hometown due to the COVID-19 pandemic. On their return, however, the reports were not good. They had to resume treatment.

Challenges

The family faced financial issues initially but got help from a friend. They initially put up at this friend’s place which was a considerable distance from the hospital and they had trouble travelling to and from the hospital. The family had been on the look out for a shelter for many months before they finally found out about Access Life.